Parents of children with disabilities encounter many questions and challenges that most parents never experience. If you are the parent of a special needs child, it is important to know where to turn for reliable answers and emotional support and what resources are available. Caregiver’s Corner is designed to be a comprehensive listing of organizations, support groups, events, services and opportunities to empower parents and caregivers of children with disabilities.
Caregiver’s Corner is part of the Colleran Firm’s ongoing commitment to assist parents who are raising special needs children. The Colleran Firm, based in Philadelphia, has provided compassionate legal assistance to many families of children with disabilities caused of birth injuries. Our family of attorneys has a special interest in these families and we are dedicated to doing everything we can to support them.
Pennsylvania and New Jersey have educational and training programs and services for parents of children with disabilities. Parents who have progressed on this life journey often have valuable information and insights to share. We want to draw upon your knowledge at Caregiver’s Corner. One light can illuminate many journeys. We encourage you to share links to websites and information about resources for parents of children with disabilities so others may benefit from your experience.
Do you know of a resource or event that we haven’t listed? We are always looking for new websites, organizations, and events that can help make Caregivers lives a little bit easier. Just click on one of the buttons below to send us your resource.Submit a Resource Submit an Event
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Look into documents, e-books and resources dedicated to you.
This page is a basic introduction to the important legal documents involved in caring for an elder.
Free ebook by Denise M. Brown detailing tips to help ease the stress of being a family caregiver.
Can also be found at this link: //www.caregiving.com/the-working-family-caregiver-a-free-ebook/Download Document
Resource created by The Institute on Aging for the National Center on Elder Abuse to help prevent elder abuse by assessing the stress of caregivers and finding ways to help reduce that stress.
This webinar explores positive approaches to challenging behavior, and offers suggestions for developing a proactive plan of action and support.
Websites that are highly committed to helping support caregivers.
Information and Special Needs Resources for Parents of Children with Special Needs or Disabilities.
With more than 50 programs and services available for New Jersey residents living with epilepsy, autism, developmental disabilities and chronic illness, The Family Resource Network (FRN) and its affiliates have been affecting lives of thousands of families across New Jersey for the past 45 years.
See how many K-12 students there are with certain specific disabilities, and how many of those students drop out or graduate with a regular high school diploma.
CouponChief.com’s Retail Savings Guide for People with Disabilities provides a detailed look at ways those with handicaps and disabilities can stretch their dollars. Discounts, services, and special offers for people with disabilities are widely available, but very few businesses will mention their willingness to help simply because the risk of offending someone is just too big to risk saying something. Managing a disability can be tough, but you don’t have to handle it all by yourself. The bottom line is: if you can save money, why not do it?
An integrated behavioral healthcare management company dedicated to the treatment of addiction, substance abuse, eating disorders and mental health issues.
Inviting individuals with special needs and their families to various events targeting children, teens, and adults as well as siblings and parents and the whole family! Based in Havertown, Delaware County, PA.
Interactive map to help parents of children with disabilities find Parent Training and Information Centers and Community Parent Resource Centers Nationwide.
Find affordable housing options throughout the state of Pennsylvania. Offers information about apartment locations, rental prices, accessibility features, development amenities, current vacancies and the status of the waiting list.
Provides information, resources, and treatment for people battling addiction and related conditions.
List of organizations that look after the welfare of caregivers.
The organization provides programs and services to people with a variety of physical, developmental, hearing, visual and speech impairments including autism, traumatic brain injury, Down Syndrome, spinal cord injuries, mental retardation, or other conditions that severely limit an individual’s independent functioning. They also host events throughout the year and have a variety of resources on their website.
Contact Info: 102 East Mermaid Lane
Philadelphia, PA 19118
Telephone: 215.248.7620 or 215.242.4200
Caregiver Volunteers of Central Jersey (CVCJ) is an interfaith nonprofit agency. Our volunteers number over 1,000. These dedicated individuals come from all walks of life to partner with us to make life better for the vulnerable in our community.
Our mission is to provide vital assistance to the elderly, disabled, veterans, and those who care for them. Our goal is to enable individuals to remain independent and to allow them to live with dignity and joy.
CVCJ provides service to 23 municipalities within Ocean County. Currently there are 2 full time and 13 part-time staff members who train and manage these volunteers.
CVCJ offers solutions to the home bound elderly, which allows them to remain independent in their own homes for as long as possible. We are funded through grants and donations from the families we assist and our generous community.
Currently there are over 1,200 volunteers assisting over 2,500 senior citizens in Ocean County. These volunteers are recruited from 0ver 60 local congregations that make up our Coalition; residents of Adult Retirement Communities and during educational presentations.
Ocean County ranks number one in the state with the highest percentage of population in the sixty plus age category. CVCJ provides a safety net and a connection to the outside world for those seniors we serve.
Contact Info: Email: email@example.com
Riverwood Plaza 2
67 Route 37 West, 2nd Floor
Toms River, NJ 08755
30 Lacey Road
Whiting, NJ 08731
61 Georgia Road
Freehold, NJ 07728
We are a non-profit organization that promotes and supports employment, stimulating activities, skill-building classes, and creative housing for people with disabilities.
ACHIEVA is a comprehensive community for families with special needs that offer the following services:
ACHIEVA Family Trust
Disability Healthcare Initiative
Older Adult Protective Services
Contact Info: ACHIEVA
711 Bingham Street
Pittsburgh, PA 15203
(412) 995-5000 or (888) 272-7229
(412) 995-5001 (fax)
Monday - Friday
8:30 a.m. to 4:30 p.m.
ACHIEVA/The Arc of Westmoreland
316 Donohoe Road
Greensburg PA 15601
(724) 837-7453 (fax)
Monday - Friday
8:30 a.m. to 4:00 p.m
ACHIEVA/The Arc of Beaver County
105 Route 18
Beaver Valley Mall
Monaca, PA 15061
(724) 775-2905 (fax)
8:30 a.m. to 4:30pm
For media inquiries, please contact Danielle Parson at (412) 995-5000 x515 or firstname.lastname@example.org.
To learn more about donations to ACHIEVA such as donating your car, a tribute gift through the United Way, a bequest or other types of gifts, please contact Jamie Rhoades at (412) 995-5000 x526 or email@example.com.
We assist families who have children with long-term catastrophic special-needs to obtain medical necessities for their children. We assist with physical, speech, aquatic and equestrian therapies. As well, we provide medical equipment and supplies when the insurance company denies or when there is no medical insurance.
Contact Info: P.O. Box 1073
Huffman, TX 77336
Spinal Cord injuries and paralysis. Specific military treatment program available.
Contact Info: 636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
LDA Visualizes a World in Which: all individuals with learning disabilities are empowered to thrive and participate fully in society; the incidence of learning disabilities is reduced; and learning disabilities are universally understood and effectively addressed. LDA’s mission is to create opportunities for success for all individuals affected by learning disabilities and to reduce the incidence of learning disabilities in future generations.
Contact Info: 4156 Library Road
Pittsburgh, PA 15234
(412) 344-0224 (Fax)
* See menu for chapter listings by state
NCIL advances independent living and the rights of people with disabilities. NCIL envisions a world in which people with disabilities are valued equally and participate fully.
We are the only statewide non-profit organization dedicated to helping people impacted by brain injury through support, advocacy, education, outreach, and prevention. Our organization offers support coordination, family support, facilitates support groups, and runs a Mon-Fri 9am-5pm Information and Resources Helpline. We also host free traveling workshops and webinars, as well as brain injury seminars for professionals in the field. All events are open to caregivers.
Contact Info: 732-745-0200 (office)
825 Georges Road, 2nd Floor
North Brunswick, NJ 08902
Advocacy resources and general wealth of information on disabilities, caring for those with disabilities and training.
Contact Info: Phone: (778) 786-4816
*See the large Resource Library for advocacy resources and general reading information.
Kids Included Together (KIT) is committed to teaching best practices for including children with disabilities.
Contact Info: Kids Included Together (KIT)
2820 Roosevelt Road, Suite 202
San Diego, CA 92106
Washington, DC Office
2013 H Street NW, Ste 620,
Washington, DC 20006
Variety provides children with disabilities in Southwestern Pennsylvania with unique programs, experiences, and equipment so they may live life to the fullest.
Contact Info: Three Penn Center West, Suite 229
Pittsburgh, PA 15276
(412) 747-2681 (Fax)
ASCEND Group Inc., the Asperger and Autism Alliance for Greater Philadelphia, is a nonprofit organization that was founded in 2001. It was launched by parents of children with Asperger Syndrome (AS) as a means to create a community of people who are concerned about the many ways that AS and other Autism spectrum disorders (ASD) affect children and adults and their families in the home, at school and in every area of their lives.
Contact Info: P.O. Box 531
Ardmore, PA 19003
GHF is a 501c3 nonprofit organization providing individualized support and advocacy services to families across the globe who are faced with a diagnosis of hydranencephaly for a child in their life.
Contact Info: PO Box 1150
Seabeck, WA 98380-9800
Our core function is a shared process of community needs assessment and health improvement planning to identify the most pressing health issues and facilitate the development of collaborative action plans to address them.
Using technology to assist those with disabilities.
The National Organization on Disability is a leading resource for businesses seeking to access the talent pool of America’s 80% of working-age people with disabilities who are not employed.
TransCen, Inc. is a non-profit 501(c)3 organization dedicated to improving educational and employment outcomes for people with disabilities.
Information and referral for brain injury survivors and family members in Pennsylvania.
Contact Info: firstname.lastname@example.org
We help people with disabilities and older Pennsylvanians find funding for assistive technology (AT) that improves the quality of their lives. We offer low and 0% interest loans for AT as well as providing information and assistance to find other sources of funding in PA. We also provide financial education through various publications and individual counseling.
Contact Info: Toll Free: 888.744.1938
1004 West 9th Ave.
King of Prussia, PA 19406
County-wide programs include community living arrangements (residential), family support, advocacy, recreation and Special Olympics training, early intervention, and a wide variety of social services.
Ability360 is an independent living center that promotes well-being and living for those with disabilities.
Camp Concepts is a Pennsylvania day and summer camp for those aged 2 to 14. The organization focuses on those with disabilities to provide unique experiences for children associated with Asperger’s syndrome, Autism, and many more.
DON is a non-profit centered in Pennsylvania, that empowers individuals within Pennsylvania to live independently.
The Institute for Behavioral Health and Developmental Disabilities Inc. is a nonprofit (501(c)(3)) human services and health care services organization specializing in providing supports for individuals with behavioral health needs, cognitive delays, and developmental disabilities. Our services are designed to help clients meet their individual goals no matter their age or ability. Services are accessible through the New Jersey Division of Children’s System of Care for children under 21 years of age. For adults 21 and over, services may be accessed through the New Jersey Division of Developmental Disabilities. Parent and caregiver resources are also available. For more information, please visit our website at www.ibhdd.org or call us at 888-604-2433.
Contact Info: 1980 Springfield Ave
Maplewood, NJ 07040
888-604-2433 Toll Free
The Developmental Growth and Enrichment of our youth is at the forefront of Tiny Tots Therapy Inc.Through outreach and collaborative resources, our team is dedicated to maximizing the independence of life skills in children and adolescents, supporting our caregivers, and increasing awareness throughout our communities. The families we work with keep us motivated in our mission of guiding children through achievable milestones and our vision of providing valuable and meaningful services to our patients remains at that heart of what we do.
Rettsyndrome.org accelerates full spectrum research towards curing Rett syndrome (RTT) and empowers families with knowledge and connectivity. As the world’s leading comprehensive private funder of RTT research, we have invested more than $38 million in peer-reviewed research grants and programs to date. We are a 501(c)3 organization, earning Charity Navigator’s most prestigious 4-star rating. Visit www.rettsyndrome.org to learn more
InVision Human Services is a family of companies that provide services and products designed to transform the lives of people who are experiencing significant life challenges.
Contact Info: 27615
A source for autism support and education.
Contact Info: Heidi Buckley
FREE resource that can direct you to agencies and programs that help people with disabilities in Pennsylvania who want to work, and improve their financial security. We will review your specific situation and guide you to resources that will help you find a job, obtain training, keep health insurance, get assistive technology, or find other support you may need. There are many great reasons to work and, with the resources we have available, it is possible! And, contrary to what some people believe, you can work without losing your financial security or health care benefits. In fact, you may even be able to increase your income! If you are unsure about working, there are ways to stay qualified for Social Security benefits while trying a job.
Contact Info: New Jersey Institute for Disabilities (NJID)
10A Oak Dr
Edison, NJ 08837
Phone: (732) 549-6187
24/7 hotlines for caregivers.
Phone Number: 1-800-896-3650
Call for emergency placement. Call to report missing people with intellectual disability.
*After 5 p.m. 215-685-6440
Phone Number: 215-829-5709
Serious incidents (i.e., assaults, gangs, harassment, etc) that occurred in school or while traveling to and from school in the school district of Philadelphia.
Phone Number: 215-400-SAFE (7233)
Phone Number: 1-800-829-2734
2850 North 24th St.
Phoenix, AZ 85008
Phone Number: 1-877-705-KIDS
24 hours a day, 7 days a week
Statewide program that offers peer support to mothers of children with special needs.
Phone Number: 1-877-914-MOM2
Trained suicide/crisis intervention staff provide counseling, consultation and referral for people seeking assistance for acute psychiatric needs in Pennsylvania.
Phone Number: 215-686-4420
Phone Number: 1-800-692-7288
Phone Number: 1-800-692-7443
Phone Number: 1-800-255-0411
Phone Number: 773-508-1000
Phone Number: 312-939-3513
Phone Number: 1-855- 4A PARENT
24 hours a day, 7 days a week
Serving those 18+ in NJ with developmental disabilities in mental or behavioral health crises.
Phone Number: 1-877-652-7624
Recipes and activities to stay healthy.
Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome.
FamilyConnect is an online, multimedia community created by the American Foundation for the Blind (AFB) and the National Association for Parents of Children with Visual Impairments (NAPVI). This site gives parents of visually impaired children a place to support each other, share stories and concerns, and link to local resources. The site also features a mom-authored blog, inspiring video testimonials from families, and articles authored by parents and experts in the field of blindness on multiple disabilities, technology, education, and more. From the personal to the professional, families will find all the resources they need to raise their children from birth to adulthood.
P.O. Box 358
Merrimac, MA 01860
E-mail: email@example.com *Autism Training for families and professionals.
The MAA Center is an online resource for those who have mesothelioma and those looking to learn more about it. Due to the long latency period after asbestos exposure, most people that are diagnosed with mesothelioma are between 50 and 70 years old. Mesothelioma is a rare cancer and as such it can be difficult for patients and caregivers to find all the information they seek. The MAA Center strives to make this process easier by providing information about the cancer itself, treatment options (including doctors and clinics that specialize in this area), and support resources. Our goal is to make such a dark time a little brighter with the right resources and to support caregivers as they walk alongside patients in their journey with cancer.
List of businesses that offer services for caregivers.
In-Home Hair Care For The Disabled
Contact Info: (609) 775-7251;
P.O Box 562,
Trenton, NJ 08603
Provides services to to assist individuals who are blind or visually impaired in areas of specialized children services, finding employment, starting a business, gaining independent living skills.
Contact Info: BBVS Central Office
1521 N. 6th Street
Harrisburg, PA 17102
444 N. 3rd Street, 5th Floor
Philadelphia, PA 19123
Ensures the safety, permanency and well-being of children and supports families by providing information, referral and advocacy services.
Contact Info: 1-877-543-7864
8:30am – 4:30pm, Monday – Friday
Contact Info: 727 Goucher Street
Johnstown, PA 15905
Provides information and referral assistance on issues affecting people with any type of disability in the State of New Jersey.
Contact Info: 1-888-285-3036
8:30am – 4:30pm, Monday – Friday
Information and referrals to health screening and treatment services.
Contact Info: 1-800-328-3838
24 hours a day, 7 days a week
NJ Children’s System of Care program administrator.
Contact Info: 1-877-652-7624
24 hours a day, 7 days a week
Contact Info: 23 W. Park Avenue
Merchantville, NJ 08109
Ph: (856) 662-2600
Fax: (856) 662-2242
eSpecial Needs was started in 2002 in St. Louis, Missouri. Resources for children with special needs were difficult to find and parents more often had to rely on school districts to supply them with therapeutic devices, which could be used at home. I experienced this first hand when my son was diagnosed with autism in 1999 due to significant delays in language.
Our mission is to make life easier for parents, more enriching for children, and more enjoyable for the entire family. Our goal is to provide children with special needs and their parents with the very finest products available. We continue to search the world over for innovative, hard to find, high-quality products, and then rigorously test them for performance and value. We take pride in offering outstanding customer service, true shopping convenience, and a complete guarantee on every item we sell. At eSpecial Needs, we want our customers to keep coming back, as their children grow.
Our product line has expanded exponentially as each year we add new and improved products. Play is a child’s most important work and eSpecial Needs continues to be the leader in special needs products and therapeutics devices. Innovation and a passion for educating parents and teachers in new developments in the early intervention field continue to fuel our growth.
Contact Info: 877-664-4565
1850 Borman Court
St. Louis, MO 63146
Allegheny Behavior Analysis Services, LLC, is an ABA practice in Pittsburgh, PA that focuses on serving and improving the lives of children and adolescents diagnosed with Autism Spectrum Disorder and other disabilities using the principles of Applied Behavior Analysis (ABA). Our ultimate goal is to work with families and children while facilitating teamwork and collaboration between those that support them. We want to provide the best quality services to our families and children so that they may have the opportunity to reach their maximum potential.
Contact Info: Phone: (412) 295-6734
Fax: (412) 837-1290
The Pennsylvania Office of Vocational Rehabilitation, or OVR, provides vocational rehabilitation services to help persons with disabilities prepare for, obtain, or maintain employment.
Contact Info: Bureau of Vocational Rehabilitation
Office of Vocational Rehabilitation
1521 North Sixth Street
Harrisburg, PA 17102
Offers massages at discounted rate for caregivers (NJ).
Peer support and suicide prevention hotline that provides confidential telephone counseling, support and referrals to local resources.
Contact Info: 1-855-NJ-HOPELINE (654-6737)
24 hours a day, 7 days a week
Committed to empowering families as advocates and partners in improving education and health outcomes for infants, toddlers, children and youth.
Contact Info: 1-800-654-SPAN (7726)
8am - 4pm, Monday – Friday
The mission of Parents Anonymous of New Jersey, Inc. is to protect children by strengthening families through mutual support, parent leadership, and advocacy.
Contact Info: 1-800-THE-KIDS
“Caregiver Coping During the Holidays” Presentation by Dale L. Ofei-Ayisi, LCSW and Susan Schwartz, CSW – COPSA EARS for Caregivers Free Program Sponsored by RWJUH and COPSA E.A.R.S. for Caregivers Rutgers University Behavioral Health Care The 3rd Monday of the...More Info
“Caregiver Coping During the Holidays”
Presentation by Dale L. Ofei-Ayisi, LCSW and Susan Schwartz, CSW – COPSA EARS for Caregivers
Free Program Sponsored by
RWJUH and COPSA E.A.R.S. for Caregivers
Rutgers University Behavioral Health Care
The 3rd Monday of the month
12 pm – 1 pm
RWJ Fitness & Wellness Center, RWJ Community Room, New Brunswick
Free 3-hour parking
The All Star Labor Classic is a high school basketball fundraiser sponsored by Philadelphia’s Organized Labor, that has raised over 2 million dollars to benefit United Cerebral Palsy of Philadelphia and high school athletes.
Spectators enjoy a day of exciting basketball by the best high school seniors in the five county area in a city vs. suburbs match-up. A total of 64 male and female athletes are selected to participate in this Philadelphia-area sporting tradition. These players are awarded scholarships to be used towards books at their future university.
More information: //www.ucpphila.org/events/allstar/
Mark your calendars for Saturday, April 22, 2017 and plan to join us for the best barn dance this side of the Mississippi!
More information: //www.cpofnj.org/hoedown
Our race is a point of pride for UCP because it is an event for people of all abilities. We had over 1,000 registered participants and so many came out despite the weather. We had a nice combination of Corporate teams, individual runners and Friends and Family Teams.
June 3, 2017
Check in and registration begin at 8:00 am. Run, walk and stroll begin at 9:30 am.
Join the 9th Annual Lakeview 5K for a great morning of family fun! Serious runners, power walkers and casual strollers will all have a super day! Bring your family, children and even pets! Warm up to Zumba, run or walk your best, then enjoy an abundance of refreshments. The race is USATF certified and a GRAND PRIX 500 point event. The Lakeview 5K gets bigger and better every year. All are welcome!